Comments for Living With Chronic Fatigue Syndrome http://livingwithcfs.wordpress.com Articles, links, and tips for people living with Chronic Fatigue Syndrome and related illnesses. Sat, 21 Nov 2009 20:47:21 +0000 http://wordpress.com/ hourly 1 Comment on Chronic Illness: Often Claims of Cures are Scams by Carla Ulbrich http://livingwithcfs.wordpress.com/2009/07/21/chronic-illness-often-claims-of-cures-are-scams/#comment-3263 Carla Ulbrich Sat, 21 Nov 2009 20:47:21 +0000 http://livingwithcfs.wordpress.com/?p=189#comment-3263 Just dropping in to say, after joining a low dose naltrexone chat group and hearing about LDN from 3 different places in the course of a month, I am on it as of 5 days ago. it takes a while to show its effects, but the studies done on LDN and lupus as well as RA and other autoimmune diseases are very promising. Just dropping in to say, after joining a low dose naltrexone chat group and hearing about LDN from 3 different places in the course of a month, I am on it as of 5 days ago. it takes a while to show its effects, but the studies done on LDN and lupus as well as RA and other autoimmune diseases are very promising.

]]> Comment on Understanding Chronic Fatigue Syndrome by Kim Klopfenstein http://livingwithcfs.wordpress.com/2009/09/02/understanding-chronic-fatigue-syndrome/#comment-3254 Kim Klopfenstein Sat, 07 Nov 2009 17:53:45 +0000 http://livingwithcfs.wordpress.com/?p=201#comment-3254 Am I the only one that is confused over everything you read regarding CFS/ME? I feel so overloaded with info I can't see straight(literally).I was diagnosed with fibro but I know I have CFS also, not to mention high blood pressure. Lately, the fog is getting worse and now bladder spasms, which i have just read that is associated with the fibro..sometimes I wish I had a disease that people could see... Am I the only one that is confused over everything you read regarding CFS/ME? I feel so overloaded with info I can’t see straight(literally).I was diagnosed with fibro but I know I have CFS also, not to mention high blood pressure. Lately, the fog is getting worse and now bladder spasms, which i have just read that is associated with the fibro..sometimes I wish I had a disease that people could see…

]]> Comment on About You by neil ziefflie http://livingwithcfs.wordpress.com/tell-me-about-yourself/#comment-3244 neil ziefflie Sun, 01 Nov 2009 22:18:25 +0000 http://livingwithcfs.wordpress.com/tell-me-about-yourself/#comment-3244 1. What is your gender (M/F)? What is your age? What are the medical conditions you suffer from? male 47 cfids 2. How many years have you been sick? How many years were you sick before you were diagnosed?13 years and 3 years 3. To what extent does your condition affect your daily life? Are you mildly impaired, moderately impaired, severely impaired? moderately impared if i dont over do it 4. How do you feel about the medical attention you are getting? Is it poor, adequate, good, great? What could be better? poor a. Do you use conventional medical treatment? Alternative? Both? i use both b. How do you feel about “claims” of cures? Are they just taking advantage of people in vulnerable positions? yup ive tryed a lot of things 5. As someone suffering from a chronic illness, what are your greatest challenges? trying to find a partner that is the same as me 6. What have been your greatest successes? my acreage of peace and seranity that i built 7. What is the worst thing about your condition? lonleyness 8. Has anything good come out of your hardships? just my acreage 9. What is the worst part about being sick? had to sell my buissnes 10. What could make the worst thing a little better? finding happiness 11. What do you like about this site.ive realized that there are many more like me 12. What could make this site better?i cant think of nuttin 13. What didn’t I ask, but you would like to tell? keep up the good work 1. What is your gender (M/F)? What is your age? What are the medical conditions you suffer from? male 47 cfids

2. How many years have you been sick? How many years were you sick before you were diagnosed?13 years and 3 years

3. To what extent does your condition affect your daily life? Are you mildly impaired, moderately impaired, severely impaired? moderately impared if i dont over do it

4. How do you feel about the medical attention you are getting? Is it poor, adequate, good, great? What could be better? poor
a. Do you use conventional medical treatment? Alternative? Both? i use both

b. How do you feel about “claims” of cures? Are they just taking advantage of people in vulnerable positions? yup ive tryed a lot of things

5. As someone suffering from a chronic illness, what are your greatest challenges? trying to find a partner that is the same as me

6. What have been your greatest successes? my acreage of peace and seranity that i built

7. What is the worst thing about your condition? lonleyness

8. Has anything good come out of your hardships? just my acreage

9. What is the worst part about being sick? had to sell my buissnes

10. What could make the worst thing a little better? finding happiness

11. What do you like about this site.ive realized that there are many more like me

12. What could make this site better?i cant think of nuttin

13. What didn’t I ask, but you would like to tell? keep up the good work

]]> Comment on About Me by neil ziefflie http://livingwithcfs.wordpress.com/about/#comment-3243 neil ziefflie Sun, 01 Nov 2009 21:55:42 +0000 #comment-3243 i read your statment and after 10 years of cfs i am understanding it more and maybee there is hope . great web site thanks i read your statment and after 10 years of cfs i am understanding it more and maybee there is hope . great web site thanks

]]> Comment on Researchers Link Cancer-Causing Retrovirus To Chronic Fatigue Syndrome by Catherine Morgan http://livingwithcfs.wordpress.com/2009/10/23/researchers-link-cancer-causing-retrovirus-to-chronic-fatigue-syndrome/#comment-3235 Catherine Morgan Sat, 24 Oct 2009 03:17:34 +0000 http://livingwithcfs.wordpress.com/?p=229#comment-3235 Thanks for taking the time to comment Sylvia. I admit to being one of the jaded...But I hope you're right and this latest study will at least revitalize the interest of the research community while also raising the credibility surrounding this disease. Thanks for taking the time to comment Sylvia. I admit to being one of the jaded…But I hope you’re right and this latest study will at least revitalize the interest of the research community while also raising the credibility surrounding this disease.

]]> Comment on Researchers Link Cancer-Causing Retrovirus To Chronic Fatigue Syndrome by Sylvia http://livingwithcfs.wordpress.com/2009/10/23/researchers-link-cancer-causing-retrovirus-to-chronic-fatigue-syndrome/#comment-3234 Sylvia Sat, 24 Oct 2009 02:18:46 +0000 http://livingwithcfs.wordpress.com/?p=229#comment-3234 I have mixed feelings about XRMV too. It would be nice to have an answer, but a retrovirus is not a very nice answer! I am a scientist and the way this has been hyped is a tad irregular. I'm hoping it's just Whittemore-Peterson's way of attracting more funding, which is certainly needed. I suppose patients are already so jaded that there isn't much risk of raising false hopes! ;) If nothing else I hope this revitalizes interest among the research community and raises the profile and credibility of the disease among the public. I have mixed feelings about XRMV too. It would be nice to have an answer, but a retrovirus is not a very nice answer! I am a scientist and the way this has been hyped is a tad irregular. I’m hoping it’s just Whittemore-Peterson’s way of attracting more funding, which is certainly needed. I suppose patients are already so jaded that there isn’t much risk of raising false hopes! ;) If nothing else I hope this revitalizes interest among the research community and raises the profile and credibility of the disease among the public.

]]> Comment on Where In The World Did My Memory Go? Could A Vitamin B12 Deficiency Be To Blame? by marlene http://livingwithcfs.wordpress.com/2007/03/13/where-in-the-world-did-my-memory-go-could-a-vitamin-b12-deficiency-be-to-blame-cfs/#comment-3228 marlene Thu, 22 Oct 2009 02:27:56 +0000 http://livingwithcfs.wordpress.com/2007/03/13/where-in-the-world-did-my-memory-go-could-a-vitamin-b12-deficiency-be-to-blame-cfs/#comment-3228 Hi i am planning on migrating to the nederlands that another side of the world from where i live i live in jamaica, but for me to reside in the nederlands i have to learn dutch i ma 45 years old i dont have the memory i use to have before i was younger i need to take some form of vitamins that will help me to be more alert and that will help me to remember or retain when i study really need some help please desperate, need know what vitmins are better for me to take many thanks god bless Hi i am planning on migrating to the nederlands that another side of the world from where i live i live in jamaica, but for me to reside in the nederlands i have to learn dutch i ma 45 years old i dont have the memory i use to have before i was younger i need to take some form of vitamins that will help me to be more alert and that will help me to remember or retain when i study really need some help please desperate, need know what vitmins are better for me to take
many thanks god bless

]]> Comment on Fibromyalgia: An Invisible Disease? An Imaginary Illness? by Heather http://livingwithcfs.wordpress.com/2008/03/18/fibromyalgia-an-invisible-disease-an-imaginary-illness/#comment-3226 Heather Mon, 19 Oct 2009 17:05:12 +0000 http://livingwithcfs.wordpress.com/?p=122#comment-3226 I know exactly what you mean. I have a wonderful doctor who is very supportive and totally believes that fibromyalgia is real even though it often seems "invisible". However, every three months when I see him for my regular check ups he always has to gauge my tenderness that day which means he presses and mashes on each tender point. I end up leaving there feeling much worse than when I arrived but at least he is trying his best to quantify an often unquantifiable illness. Thank God for Doctors who believe. I know exactly what you mean. I have a wonderful doctor who is very supportive and totally believes that fibromyalgia is real even though it often seems “invisible”. However, every three months when I see him for my regular check ups he always has to gauge my tenderness that day which means he presses and mashes on each tender point. I end up leaving there feeling much worse than when I arrived but at least he is trying his best to quantify an often unquantifiable illness. Thank God for Doctors who believe.

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