Living With Chronic Fatigue Syndrome

Articles, links, and tips for people living with Chronic Fatigue Syndrome and related illnesses.

Redefining Yourself – Living Well With Chronic Illness

Posted by Catherine Morgan on October 25, 2008

Living Well With Chronic Illness – Redefining Yourself – by Catherine Morgan

This issue is so important, and that is because; When you suffer from chronic illness, although you are being treated (even successfully), going back to your former life before you were sick may be impossible. I hear this all the time from others suffering with CFS and FM, and I am certain it holds true for many others suffering with chronic disease as well. The biggest problem, is that many of us “define” ourselves through our work, or what we do for a living. Quite frankly, this is a bad idea even if you are a healthy person. None of us “are” our work. Our work is not who we are, it’s simply what we do. But, we all know it doesn’t always feel that way, especially when out of nowhere, we are unable to do what we do.

So….What do you do, when this happens to you? Well, it’s not so different than when a stay at home mom sees her last child off to college. They call it “Empty Nest Syndrome” for her, and it can be quite devastating for a women who has devoted her life up until then (usually at least 18 years or more) to being the best mom she could be, and doing it as a career. Now she is left with no-one to mother, and she loses her sense of “self”. At this point, she can choose to except her new life and find new and exciting things to do with herself (maybe go back to school, get back into a career, take up a hobby, or maybe travel), or she can choose to be sad and depressed and feel like her life is over because she has no-one left to take care of. It’s not the same as losing your identity due to illness, but it is an example of seeing your life (or identity), as half full or half empty.

Feeling sorry for yourself can be a full time job, but it’s a job that doesn’t benefit you in any way….so just take it on a part-time basis. Then on the days you’re not working hard at that job, focus on finding something to do with your life that can benefit you.

Take some time to write a list of all the things you can do in your current condition (not just work things; hobbies, school, etc)….even if it is something you don’t know how to do. Write down some “dream” ideas too. This isn’t something you do in one day…do it over days or even weeks. Open your thoughts to ideas you may not have ever even considered before…this is the first step in “re-making” yourself. And the second step, is believing it is possible for you to do one or more of these things. Take your pessimistic cap off for a little bit, and let yourself “feel” the possibilities…..see it in your minds eye.

Now, it’s o.k. if you don’t “feel” it right away, it is going to take time. The important thing is, to not let yourself feel hopeless, there are always possibilities out there. It’s just that many times we can’t see these opportunities, because we live in a box that we think we can never escape from. Just remember; This happens to everyone, not just you. So just do yourself a favor, and allow yourself to believe that you can escape if you wanted to.

This is a very long process, so don’t be too hard on yourself. It’s taken me years, and I am still only in the middle of the process. But, you do need to start the process…you can’t reach your dreams or your potential, if you don’t open yourself up to the possibility.

5 Responses to “Redefining Yourself – Living Well With Chronic Illness”

  1. Thank God I found your blog!

  2. Charles Sheffield said

    Living well with a Chronic Pain or Chronic Illness requires stanima! To do this I seek out things that will help reduce my stress levels: massage therapy, accupunture, healing touch, medical hypnosis, yoga and meditation! Focus your goals on what you can do toaday with the energy you have now, do not dwell on the past. The above list has helped me, but you have to try what works for you. JUST KEEP GOING! and give yourself lovingkindness.

  3. myfibro said

    Hello,I’ve just found your blog..Great work!
    I suffer from fms and I’m fighting every day to see how my life will go on under the new conditions..It’s a real struggle!

  4. myfibro said

    I will be more then glad to keep in touch!
    http://www.myfibrolife.wordpress.com

  5. emzneale said

    fanstatistic advice. the worst thing about being diagnosed with M.E/CFS was griefing the old me and my old life. but the truth is that was not working for me- i got sick and progressively run down.

    its about keeping your spirit healthy when the physical,mental and emotionsl sides feel weak. re-evaluate your dreams, discover new aspects of living, and take note of the smallest pleasures that used to be taken for granted.

    most of all live in the moment. make the most of the good days, do not burn yourself out but smile and giggle, spend time with a friend! love life!

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