Comments on: Fibromyalgia: An Invisible Disease? An Imaginary Illness? http://livingwithcfs.wordpress.com/2008/03/18/fibromyalgia-an-invisible-disease-an-imaginary-illness/ Articles, links, and tips for people living with Chronic Fatigue Syndrome and related illnesses. Sat, 07 Nov 2009 17:53:45 +0000 http://wordpress.com/ hourly 1 By: Heather http://livingwithcfs.wordpress.com/2008/03/18/fibromyalgia-an-invisible-disease-an-imaginary-illness/#comment-3226 Heather Mon, 19 Oct 2009 17:05:12 +0000 http://livingwithcfs.wordpress.com/?p=122#comment-3226 I know exactly what you mean. I have a wonderful doctor who is very supportive and totally believes that fibromyalgia is real even though it often seems "invisible". However, every three months when I see him for my regular check ups he always has to gauge my tenderness that day which means he presses and mashes on each tender point. I end up leaving there feeling much worse than when I arrived but at least he is trying his best to quantify an often unquantifiable illness. Thank God for Doctors who believe. I know exactly what you mean. I have a wonderful doctor who is very supportive and totally believes that fibromyalgia is real even though it often seems “invisible”. However, every three months when I see him for my regular check ups he always has to gauge my tenderness that day which means he presses and mashes on each tender point. I end up leaving there feeling much worse than when I arrived but at least he is trying his best to quantify an often unquantifiable illness. Thank God for Doctors who believe.

]]> By: Angel http://livingwithcfs.wordpress.com/2008/03/18/fibromyalgia-an-invisible-disease-an-imaginary-illness/#comment-2662 Angel Sun, 09 Aug 2009 02:25:40 +0000 http://livingwithcfs.wordpress.com/?p=122#comment-2662 Hi there, I'm also someone who suffers from both Chronic Fatigue and Fibromyalgia. Two invisible, highly debilitating diseases that many people don't seem to think you have. Or don't take seriously. I've also been from doctor to doctor, who tried to sell me some gimmick or another that would supposedly 'cure' me. I have been suffering with both for most of my life, however it wasn't until a few years ago that I discovered what the problem was. I'll spare you the rest of the gory details, but I can highly sympathize! Hi there, I’m also someone who suffers from both Chronic Fatigue and Fibromyalgia. Two invisible, highly debilitating diseases that many people don’t seem to think you have. Or don’t take seriously.
I’ve also been from doctor to doctor, who tried to sell me some gimmick or another that would supposedly ‘cure’ me. I have been suffering with both for most of my life, however it wasn’t until a few years ago that I discovered what the problem was.
I’ll spare you the rest of the gory details, but I can highly sympathize!

]]> By: Haifa2404 http://livingwithcfs.wordpress.com/2008/03/18/fibromyalgia-an-invisible-disease-an-imaginary-illness/#comment-1221 Haifa2404 Wed, 11 Mar 2009 07:19:03 +0000 http://livingwithcfs.wordpress.com/?p=122#comment-1221 I understand what you're going through, I really do. I was diagnosed with Fibromyalgia just yesterday. But frankly, I think that that doctors (especially rheumatologists) say I have Fibromyalgia because they don't know what to do anymore to ease my pain. It's the easy way out: Chronic pain that can not be proved by any blood test or any other scientific process must be Fibromyalgia! Oh and they can prove it by pressing against eighteen tender points in your body and if it hurts then it must be it. Yeah right! I understand what you’re going through, I really do. I was diagnosed with Fibromyalgia just yesterday. But frankly, I think that that doctors (especially rheumatologists) say I have Fibromyalgia because they don’t know what to do anymore to ease my pain. It’s the easy way out: Chronic pain that can not be proved by any blood test or any other scientific process must be Fibromyalgia! Oh and they can prove it by pressing against eighteen tender points in your body and if it hurts then it must be it. Yeah right!

]]> By: Kevin http://livingwithcfs.wordpress.com/2008/03/18/fibromyalgia-an-invisible-disease-an-imaginary-illness/#comment-1009 Kevin Sun, 09 Nov 2008 06:42:22 +0000 http://livingwithcfs.wordpress.com/?p=122#comment-1009 Have you heard about Dr. St. Amand's guaifenesin protocol for treating fibromyalgia? It's not a pain reliever and goes beyond treating just the symptoms. You could visit the protocol's web site: http://fibromyalgiatreatment.com/ I have followed it for 5 months and my pains, fatigue and symptoms have significantly improved. It's miraculous! Kevin Have you heard about Dr. St. Amand’s guaifenesin protocol for treating fibromyalgia? It’s not a pain reliever and goes beyond treating just the symptoms. You could visit the protocol’s web site:

http://fibromyalgiatreatment.com/

I have followed it for 5 months and my pains, fatigue and symptoms have significantly improved. It’s miraculous!

Kevin

]]> By: icarecafe http://livingwithcfs.wordpress.com/2008/03/18/fibromyalgia-an-invisible-disease-an-imaginary-illness/#comment-923 icarecafe Mon, 15 Sep 2008 12:52:35 +0000 http://livingwithcfs.wordpress.com/?p=122#comment-923 the icarecafe would really like your help with a discussion on Fibromyalgia As you many know the icarecafe has been set up to provide a space for patients, carers and their supporters online. Some of the members have set up a discussion group on the subject of Fibromyagia. The group has asked lots of questions which are still in the process of being answered. So we thought it appropriate if we invited people from other Fibromyalgia discussion group and blogs to ask if they wished to participate. To have a look at the discussions so far please have a look at http://www.icarecafe.com/?page_id=1107&group_id=36 Please do feel free to join in the discussions and to post any information which might be of interest to our members. If you have any questions please feel free to get in touch. I’m one of the moderators of the icarecafe and I can be contacted by sending and internal email to my profile. Thanks very much in advance for your help! Best wishes Belinda Shale Moderator – the icarecafe http://www.icarecafe.com the icarecafe would really like your help with a discussion on Fibromyalgia

As you many know the icarecafe has been set up to provide a space for patients, carers and their supporters online.

Some of the members have set up a discussion group on the subject of Fibromyagia. The group has asked lots of questions which are still in the process of being answered. So we thought it appropriate if we invited people from other Fibromyalgia discussion group and blogs to ask if they wished to participate.

To have a look at the discussions so far please have a look at

http://www.icarecafe.com/?page_id=1107&group_id=36

Please do feel free to join in the discussions and to post any information which might be of interest to our members.

If you have any questions please feel free to get in touch. I’m one of the moderators of the icarecafe and I can be contacted by sending and internal email to my profile.

Thanks very much in advance for your help!

Best wishes

Belinda Shale
Moderator – the icarecafe

http://www.icarecafe.com

]]> By: Sandy/Fighting Fatigue http://livingwithcfs.wordpress.com/2008/03/18/fibromyalgia-an-invisible-disease-an-imaginary-illness/#comment-806 Sandy/Fighting Fatigue Sun, 08 Jun 2008 01:43:50 +0000 http://livingwithcfs.wordpress.com/?p=122#comment-806 Hi! I’m having a blog carnival and would love for you to submit a post! You can read more about it here: http://icdisease.today.com/2008/06/07/join-the-ic-disease-health-blog-carnival/ Hi! I’m having a blog carnival and would love for you to submit a post! You can read more about it here:

http://icdisease.today.com/2008/06/07/join-the-ic-disease-health-blog-carnival/

]]> By: RAD http://livingwithcfs.wordpress.com/2008/03/18/fibromyalgia-an-invisible-disease-an-imaginary-illness/#comment-794 RAD Fri, 16 May 2008 04:19:24 +0000 http://livingwithcfs.wordpress.com/?p=122#comment-794 Catherine, I can so relate to your blog. My wife has Ehlers-Danlos Syndrome, a chronic illness of the connective tissue that has some cross over to the symptoms CFS patients experience. She often has days where she, for lack of a better word, feels like crap, yet looks great. It's very hard for her to make people understand that "I may look OK but I can't stand in line and my neck is killing me". Some days she takes day by day and some it's minute by minute. I'm happy to here you found a good doctor. I know what it's like trying to find one that doesn't think you are crazy or a whiner. We went through that too. Don't give up. Lean on those around you. They want to help. Catherine, I can so relate to your blog. My wife has Ehlers-Danlos Syndrome, a chronic illness of the connective tissue that has some cross over to the symptoms CFS patients experience. She often has days where she, for lack of a better word, feels like crap, yet looks great. It’s very hard for her to make people understand that “I may look OK but I can’t stand in line and my neck is killing me”.

Some days she takes day by day and some it’s minute by minute. I’m happy to here you found a good doctor. I know what it’s like trying to find one that doesn’t think you are crazy or a whiner. We went through that too. Don’t give up. Lean on those around you. They want to help.

]]> By: Monica http://livingwithcfs.wordpress.com/2008/03/18/fibromyalgia-an-invisible-disease-an-imaginary-illness/#comment-789 Monica Fri, 09 May 2008 23:02:11 +0000 http://livingwithcfs.wordpress.com/?p=122#comment-789 Oh my gosh, tears are rolling down my face as I read your article. Trust me, I know exactly how you feel about CFS/Fibromialgia being the "invisible" illnesses. I'll spare you the story, but wanted to make a post saying how I understand! And, May 12, 2008 is ME/CFS Awareness Day. I've never been one for 'causes', but felt compelled to write about it on my blog. http://handmadebyannabelle.blogspot.com/ There is a video to help others understand this debilitating illness. Thank you for blogging about CFS! Monica Oh my gosh, tears are rolling down my face as I read your article. Trust me, I know exactly how you feel about CFS/Fibromialgia being the “invisible” illnesses.

I’ll spare you the story, but wanted to make a post saying how I understand!

And, May 12, 2008 is ME/CFS Awareness Day. I’ve never been one for ’causes’, but felt compelled to write about it on my blog.

http://handmadebyannabelle.blogspot.com/

There is a video to help others understand this debilitating illness.

Thank you for blogging about CFS!

Monica

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