Comments on: When Chronic Fatigue Syndrome Brings You Down — It’s sometimes so hard to get back up again. http://livingwithcfs.wordpress.com/2007/05/23/when-chronic-fatigue-syndrome-brings-you-down-its-sometimes-so-hard-to-get-back-up-again/ Articles, links, and tips for people living with Chronic Fatigue Syndrome and related illnesses. Sat, 07 Nov 2009 17:53:45 +0000 http://wordpress.com/ hourly 1 By: M http://livingwithcfs.wordpress.com/2007/05/23/when-chronic-fatigue-syndrome-brings-you-down-its-sometimes-so-hard-to-get-back-up-again/#comment-1019 M Thu, 13 Nov 2008 10:33:22 +0000 http://livingwithcfs.wordpress.com/2007/05/23/when-chronic-fatigue-syndrome-brings-you-down-its-sometimes-so-hard-to-get-back-up-again/#comment-1019 Do not hide your emotions. It only makes it worse. You're not crazy, it's obvious. Crazy people do not realize they have crazy thoughts. You have a subtype of OCD which is driven by fear of losing control of yourself. Fear and fear alone is driving this things in your mind. Fear of losing control. Face that, accept it as a temporal condition, let it float pass you and let time pass. It will pass. When you get caught in spiral of worry, detach yourself from it. Say to yourself, ok, what are the chances that I am going to lose my mind? You didn't up till now, so you will not even later. Zero. Also, AD may help. Maybe you can give them a try. I did, there is too much crap written on internet about it. You will get no withdrawal shit if you give them a month of trial. Many people have been on them and got out of it. It may help. Do not hide your emotions. It only makes it worse.

You’re not crazy, it’s obvious. Crazy people do not realize they have crazy thoughts. You have a subtype of OCD which is driven by fear of losing control of yourself.

Fear and fear alone is driving this things in your mind. Fear of losing control. Face that, accept it as a temporal condition, let it float pass you and let time pass. It will pass.

When you get caught in spiral of worry, detach yourself from it. Say to yourself, ok, what are the chances that I am going to lose my mind? You didn’t up till now, so you will not even later. Zero.

Also, AD may help. Maybe you can give them a try. I did, there is too much crap written on internet about it. You will get no withdrawal shit if you give them a month of trial. Many people have been on them and got out of it. It may help.

]]> By: Kim http://livingwithcfs.wordpress.com/2007/05/23/when-chronic-fatigue-syndrome-brings-you-down-its-sometimes-so-hard-to-get-back-up-again/#comment-811 Kim Sat, 14 Jun 2008 04:26:41 +0000 http://livingwithcfs.wordpress.com/2007/05/23/when-chronic-fatigue-syndrome-brings-you-down-its-sometimes-so-hard-to-get-back-up-again/#comment-811 Sue, I know you wrote this a while ago, but I just stumbled upon this. Wow, just reading made me realize that I am not alone. I too have CFS and I agree, the hardest part of this is what this condition does to our minds. Besides the fatigue and the overall "ill" feelings, I find it most difficult to explain and cope with my anxious thoughts and the feeling that I am somehow losing my mind. And there is no escape. I hide it well though - my husband and my kids probably have no idea how much I struggle with this because on the outside, I seem normal. But like you, there are those days when I want nothing more than to get out of my own mind. It is the worst feeling ever! But saying all of this, I totally believe that we can recover. I completely hold to the fact that there is hope. Our bodies are trying to tell us something - and I have been trying so hard to listen and to take better care of myself. I think I am slowly getting better. I have been keeping a log and documenting my symptoms, stress level, hours of sleep, and overall well being. It's like I'm taking two steps forward and a step back. The log has been good for me. When I am down and discouraged, I can at least see something concrete that tells me I am moving forward .... I don't imagine that I will go back to what I was before. Maybe I shouldn't anyway. I was such a fast-paced person who worried about getting everything right. Now, I just hope to feel good enough each day to enjoy life again and be able to help others in similar situations. I don't know how I'm going to get there - but I will. You will, too. I will keep you in my prayers. Write if you can and let me know how you're doing. Kim Sue,
I know you wrote this a while ago, but I just stumbled upon this. Wow, just reading made me realize that I am not alone. I too have CFS and I agree, the hardest part of this is what this condition does to our minds. Besides the fatigue and the overall “ill” feelings, I find it most difficult to explain and cope with my anxious thoughts and the feeling that I am somehow losing my mind. And there is no escape. I hide it well though – my husband and my kids probably have no idea how much I struggle with this because on the outside, I seem normal. But like you, there are those days when I want nothing more than to get out of my own mind. It is the worst feeling ever!

But saying all of this, I totally believe that we can recover. I completely hold to the fact that there is hope. Our bodies are trying to tell us something – and I have been trying so hard to listen and to take better care of myself. I think I am slowly getting better. I have been keeping a log and documenting my symptoms, stress level, hours of sleep, and overall well being. It’s like I’m taking two steps forward and a step back. The log has been good for me. When I am down and discouraged, I can at least see something concrete that tells me I am moving forward ….

I don’t imagine that I will go back to what I was before. Maybe I shouldn’t anyway. I was such a fast-paced person who worried about getting everything right. Now, I just hope to feel good enough each day to enjoy life again and be able to help others in similar situations. I don’t know how I’m going to get there – but I will. You will, too. I will keep you in my prayers. Write if you can and let me know how you’re doing.

Kim

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