A Collection Of Images And Posts — From Living With Chronic Fatigue Syndrome
Posted by Catherine Morgan on April 19, 2007
picture by © thunderboot
I put this picture up to let you know that I am working on a post about how chronic illness such as CFS and FM, can make a person feel all alone. If you have any thoughts on the subject I would love to include them in the post….just put them in the comment section on this post for now. Thanks.
Until then, here are some of the posts I have written about my personal experiences with CFS (just click on the title and it will take you to the post):
ONE LESSON FROM A DECADE OF FIGHTING CHRONIC ILLNESS:
picture by © cloud9999
CHRONIC ILLNESS AND DEPRESSION — WHAT CAME FIRST?
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FINDING EMPOWERMENT THROUGH ADVERSITY:
picture by © joansheartart
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PEOPLE WITH CHRONIC FATIGUE SYNDROME DON’T WANT YOUR SYMPATHY, THEY WANT YOUR EMPATHY.
picture by © mynippleshurt123
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WHERE IN THE WORLD DID MY MEMORY GO?
picture by © PenalopeRoses
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WHAT SHOULD YOU DO IF YOU THINK YOU HAVE CFS?
picture by © fairy774
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WILL CHRONIC FATIGUE SYNDROME EVER GET A NAME CHANGE?
picture at My fears
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picture by © sherry81174
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HOW BLOOD PRESSURE IS RELATED TO CFS:
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NEVER GIVE UP HOPE:
picture by © suzy1951
One thing I will never do is give up hope. Not just that I get well someday, although I do hope and pray for that. What I refuse to give up hope about, is that I am here for a purpose. I will never give up hope that I will one day see the blessing, and see the purpose, in what I now can only see as suffering. I believe in my heart that we are all here for a very important reason, it’s just that many of us aren’t quite sure what that reason is, and that’s o.k. We just can’t give up hope that one day we will see the light, and it will all make complete sense to us….on my dark and sad days, that is what I try to remember.
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Well, that’s it. I’ll be back with a new post on Monday. Hope you have a great weekend.
- Catherine
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Rachel said
Re: She Cries Alone
Hi Catherine,
I am still admiring all your posts. I would love to contribute to your project. Is there a way I could send you a private message, rather than post here?
I will try to point out a few reasons why I feel alone.
* Nobody knows how I am struggling everyday life.
* I still can not find a doctor who would treat ME/CFS or accept ME/CFS as a true illness.
* I have to move to find the accommodation I could afford with small welfare income.
* The supposed to be a new social worker in this area, told me there was nothing he could help.
* I am supposed to be entitled to community support to receive domestic assistant. However, I am waiting for someone to contact me since I moved to new area for 4 months now.
* Majority of friends stopped stay in touch with me long time ago. Because;
– I often jinxed myself (do you use that expression, too?) and often could not show up to events, appointments, or get togethers.
– I can not go out anymore, even for a cup of coffee.
– They do not like using email.
– They could not understand the reason why I could not answer their phone call was because my body was paralised.
– They got upset when I told them I have tried whatever they adviced me to try and did not wish to try it anymore.
* When I cry because things are just too hard, nobody hears me…
I have more, but my brain is fogged and I can not think anymore. Sorry, the list sounds very negative. But I just say things as they are. I can not pretend it is something different anymore. But I have no intention of getting sympathy.
I still have good moments and I still have hope.
Love
Rachel
PS. 12 May is ME/CFS awareness day here in Australia. There will be nothing done in general public, I’m afraid. (This could be another reason why I feel lonely. lol) I am also trying to post something to contribute to the day. But I do not ‘how’ yet.
Catherine Morgan said
Hi Rachel,
Thanks for the reply to my request. I have sent you an e-mail letting you know how you could contribute further.
Catherine.
In response to Catherine's question « Blue Coffee Mug said
[...] question to fellow ME/CFS sufferer, “what is the biggest thing that makes us feel lonely because of CFS” got me [...]